Colon CFR

Australasian Colorectal Cancer Family Study

  • Baseline Family Hx completed during Phases I-III: ACCFR
  • Baseline Epi/Risk Factors completed during Phases I-II: ACCFR
  • Baseline Epi/Risk Factors completed during Phase III: ACCFR
  • Baseline Epi/Risk Factors Female Proxy completed during Phases I-II: ACCFR
  • Baseline Epi/Risk Factors Male Proxy completed during Phases I-II: ACCFR
  • Chemotherapy_Radiation Appendix to BL Epi/Risk Factors completed during Phase II (added 2006): ACCFR
  • Follow up Epi/Risk Factors completed during Phase II: ACCFR
  • Follow up Epi/Family Hx completed during Phase III: ACCFR
  • Follow up Epi/Family Hx completed during Phase IV: ACCFR
  • Follow up Epi/Family Hx completed during Phase V: ACCFR
  • Australasia Diet (administered during Phases I-III): ACCFR
  • CRC Pathology Data Abstraction Form 1998-2019: ACCFR
  • CRC Pathology Data Abstraction Form 2020-current: All sites
  • CRC Clinical Abstraction Form: ACCFR

Hawaii Family Registry of Colon Cancer

  • Baseline Family Hx completed during Phases I-III: HAWAII
  • Baseline Epi/Risk Factors completed during Phase I: HAWAII
  • Baseline Epi/Risk Factors completed during Phase II: HAWAII
  • Baseline Epi/Risk Factors completed during Phase III: HAWAII
  • Follow up Family Hx completed during Phase II: HAWAII
  • Follow up Epi/Risk Factors completed during Phase II: HAWAII
  • Follow up Epi/Family Hx completed during Phase III: HAWAII
  • Follow up Epi/Family Hx completed during Phase IV: HAWAII
  • Follow up Epi/Family Hx completed during Phase V: HAWAII
  • Diet administered during Phases I-II: HAWAII
  • CRC Pathology Data Abstraction Form 1998-2019 HAWAII
  • CRC Pathology Data Abstraction Form 2020-current: All sites
  • CRC Clinical Abstraction Form, HAWAII

Northern California/UCSF Colon Cancer Family Registry

Joined the CCFR in Sep 2004 as a subsite to Hawaii CCFR. Currently located at UCSF, previously at CPIC (formerly known as NCCC)

  • Baseline Family Hx, proband version, completed during Phases II-III: NCCC/CPIC
  • Baseline Family Hx, control version, completed during Phases II-III: NCCC/CPIC
  • Baseline Epi/Risk Factors completed during Phase II: NCCC/CPIC
  • Baseline Epi/Risk Factors completed during Phase III: NCCC/CPIC
  • Follow up Epi/Family Hx completed during Phase III: NCCC/CPIC
  • Follow up Epi/Family Hx completed during Phase IV: NCCC/CPIC
  • Follow up Epi/Family Hx completed during Phase V: UCSF
  • Diet (administered during Phases II-III): NCCC/CPIC (developed by the Univ of Hawaii)
  • CRC Pathology Data Abstraction Form 2004-2019: NCCC/CPIC
  • CRC Pathology Data Abstraction Form 2020-current: UCSF

Mayo Colorectal Cancer Family Registry

  • Baseline Family Hx completed during Phases I-III: MAYO
  • Baseline Epi/Risk Factors completed during Phases I-II: MAYO
  • Baseline Epi_Risk Factors completed during Phase III: MAYO
  • Follow up Epi completed during Phase II: MAYO
  • Follow up Epi/Family Hx completed during Phase III: MAYO
  • Follow up Epi/Family Hx completed during Phase IV: MAYO
  • Follow up Epi/Family Hx completed during Phase V: MAYO
  • CRC Pathology Data Abstraction Form 1998-2019: MAYO
  • CRC Pathology Data Abstraction Form 2020-current: All sites
  • CRC Clinical Abstraction Form: MAYO

Ontario Familial Colon Cancer Registry

  • Baseline Family Hx completed during Phase I: OFCCR
  • Baseline Family Hx completed during Phase II: OFCCR
  • Baseline Family Hx completed during Phase III: OFCCR
  • Baseline Epi/Risk Factors completed during Phase I: OFCCR
  • Baseline Epi/Risk Factors completed during Phase II: OFCCR
  • Baseline Epi/Risk Factors completed during Phase III: OFCCR
  • Follow up Family Hx completed during Phase II: OFCCR
  • Follow up Epi/Risk Factors completed during Phase II: OFCCR
  • Follow up Epi/Family Hx completed during Phase III: OFCCR
  • Follow up Epi/Family Hx completed during Phase III: OFCCR
  • Follow up Epi/Family Hx completed during Phase IV: OFCCR
  • Follow up Epi/Family Hx completed during Phase V: OFCCR
  • Diet (administered during Phases I-II): OFCCR (developed by the Univ of Hawaii)
  • CRC Pathology Data Abstraction Form 1998-2019: OFCCR
  • CRC Pathology Data Abstraction Form 2020-current: All sites
  • CRC Clinical Abstraction Form rev Dec 2013: OFCCR

Seattle Familial Colorectal Cancer Registry

  • Baseline Epi/Family Hx completed during Phase I (1998-2001): FHCRC
  • Baseline Epi/Family Hx completed during Phases I-II (2001-2004): FHCRC
  • Baseline Epi/Family Hx completed during Phases II-III (2004-2007): FHCRC
  • Baseline Epi/Family Hx completed during Phase III (2007-2012): FHCRC
  • Follow up Epi/Family Hx completed during Phase II: FHCRC
  • Follow up Epi/Family Hx completed during Phase III: FHCRC
  • Follow up Epi/Family Hx completed during Phase IV: FHCRC
  • Follow up Epi/Family Hx completed during Phase V: FHCRC
  • CRC Pathology Data Abstraction Form 1998-2019: FHCRC
  • CRC Pathology Data Abstraction Form 2020-current: All sites
  • CRC Clinical Data Abstraction Form: FHCRC

Cedars-Sinai & Cleveland Clinic (formerly USC Consortium)

  • Baseline Family Hx completed during Phases I-II: USC
  • Baseline Family Hx completed during Phase III: USC
  • Baseline Pedigree Forms: MN USC
  • Baseline Epi/Risk Factors completed during Phases I-II: USC
  • Baseline Epi/Risk Factors completed during Phase III: USC
  • Follow up Epi/Risk Factors completed during Phase II: USC
  • Follow up Epi/Risk Factors completed during Phase III: USC
  • Follow up Epi/Family Hx completed during Phase IV: Cleveland Clinic, UCSF
  • Follow up Epi/Family Hx completed during Phase V: Cleveland Clinic, UCSF
  • Diet (administered during Phases I_II): USC (developed by the Univ of Hawaii)
  • CRC Pathology Data Abstraction Form 1998-2019: USC
  • CRC Pathology Data Abstraction Form 2020-current: All sites
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